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Alder Hey Hospital

Improving Services for People with Learning Disabilities and Autism at Alder Hey

by Joann Kiernan posted on 16/08/17

The recent Confidential Inquiry into Premature Deaths of People with Learning Disabilities (CIPOLD) and the introduction of Learning Disability Mortality Reviews (LeDeR) are both aimed at trying to understand why the inequalities in access to healthcare faced by people with learning disabilities and/or autism exist. It is clearly a multitude of factors that contribute to […]

What You Said About the Paving the Way Website

Vivien Cooper, Mum to Daniel and Chief Executive of the Challenging Behaviour Foundation posted on 07/06/17

Thank you to everyone who filled in the survey about the Paving the Way website.  We have produced a report of the findings which will help to inform the future development of the website. When Daniel was little, we were desperate for information – and it was really hard to find. We wanted to know […]

Members of the Cumbria Clinical Commissioning Group Members of the Cumbria Clinical Commissioning Group

Cumbria’s New Challenging Behaviour Early Intervention Service

by Harry Harrison, Commissioning Manager of the Children and Families Team at Cumbria CCG on May 23rd 2017

The inception of our new Challenging Behaviour Early Intervention Service followed the transfer of a Children’s Respite home from the Health Service back under Local Authority jurisdiction.  The transfer freed up £300k that the Cumbria Clinical Commissioning Group (CCG) Children and Families Team, in partnership with the Local Authority, decided to reinvest in the provision […]

Norman Lamb MP meeting Josh for the first time since he left the ATU Norman Lamb MP meeting Josh for the first time since he left the ATU

Meeting Josh after the Assessment and Treatment Unit

by Phill, Josh's dad, and Norman Lamb MP posted on 03/05/17

Many of you who supported the petition will know why and how we campaigned to get Josh home. By now, you will also probably know from updates and pictures of Josh that it was the right thing to do and that home is the best possible treatment, care and use of money. Josh has settled into […]

Mary Busk, family carer, with her son Alex Mary Busk, family carer, with her son Alex

The Education, Health and Care Plan Process

Mary Busk, family carer posted on 10/02/17

As a parent carer who had lived and breathed special educational needs and disability reform for years, and enthusiastically shared my input, personally and through the National Network of Parent Carer Forums, to the Bercow and Lamb reviews, I had great expectations as the day for starting my son’s Education, Health and Care (EHC) Plan […]

Dame Christine Lenehan

The Lenehan Review – These Are Our Children

by Dame Christine Lenehan, CEO of the Council for Disabled Children on January 26th 2017

Working with children and young people with challenging behaviour: changes needed at every level of the system Last summer the then Minister for Social Care asked me to undertake a review of the system to understand why it continued to fail children and young people with a dual diagnosis of mental health needs and learning […]

New Resources: A Pathway for Children

by family carer Jacky, and Jacqui Shurlock on January 4th 2017

The Challenging Behaviour Foundation has been working with the National Development Team for inclusion (NDTi) to develop three new resources setting out a vision of future local pathways for children with learning disabilities and/or autism whose behaviours may challenge.Family Carer Jacky shows why a new Children’s Pathway is needed: My son Tomas became eighteen in September, and […]

Rowena Rossiter Ro Rossiter, Consultant Clinical Psychologist and Honorary Researcher at the Tizard Centre

Early Intervention Project: Looking back, looking forward

Ro Rossiter, Consultant Clinical Psychologist and Honorary Researcher at the Tizard Centre posted on 07/12/16

As an Early Intervention Project Steering Group member, I’ve spent some time reflecting on the progress, impact and future now that the 3 year project funding has ended. The Early Intervention Project has been the most focused, dynamic and energizing piece of work I can remember being part of (and at my age that is […]

Restrictive Interventions

Kate, Laura's mum posted on 13/09/16

My daughter, Laura, often becomes anxious in environments that she cannot cope with. Because she has a sensory processing disorder, as is often the case for people with severe or complex needs, she can find her surroundings and contexts (lights, noise, people, unfamiliarity, bad night’s sleep…) more stressful than your typical person. Furthermore, Laura cannot […]

Keeping in touch with home

posted on 19/07/16

The CBF and Mencap have published a new report based on research with families whose children are in residential placements. The report is the first time guidance has been issued on how residential settings should ensure parents can keep in touch with the thousands of children and young people with a learning disability who often live […]

Understanding Humanity

Christine Lenehan posted on 31/05/16

For the last 40 years I have had the pleasure of working alongside disabled children, young people and their families. My career started in the long stay hospitals of the late 1970s and early 80s when we finally began, as a society, to believe that children and adults with learning disabilities should live in the […]

Handing the power to family carers through Positive Behavioural Support (PBS) resources

Professor Richard Hastings (University of Warwick) posted on 05/05/16

I am a researcher, so I am going to start this blog with some research findings. In 2014, Gemma Griffith (Bangor University) and I published a study where we summarised research studies from around the world in which family carers of children and adults with learning disabilities whose behaviour challenges were interviewed about their lives. […]