My daughter, Laura, often becomes anxious in environments that she cannot cope with. Because she has a sensory processing disorder, as is often the case for people with severe or complex needs, she can find her surroundings and contexts (lights, noise, people, unfamiliarity, bad night’s sleep…) more stressful than your typical person. Furthermore, Laura cannot […]
The CBF and Mencap have published a new report based on research with families whose children are in residential placements. The report is the first time guidance has been issued on how residential settings should ensure parents can keep in touch with the thousands of children and young people with a learning disability who often live […]
For the last 40 years I have had the pleasure of working alongside disabled children, young people and their families. My career started in the long stay hospitals of the late 1970s and early 80s when we finally began, as a society, to believe that children and adults with learning disabilities should live in the […]
I am a researcher, so I am going to start this blog with some research findings. In 2014, Gemma Griffith (Bangor University) and I published a study where we summarised research studies from around the world in which family carers of children and adults with learning disabilities whose behaviour challenges were interviewed about their lives. […]
“Parents often talk about how hard it is to take the decision for their child to live outside the family home – even if they have fought hard for a specialist school placement. Where schools are a long distance from the family home, there are particular concerns about how to stay in touch. “A good […]
We have all heard the phrase ‘transition is like falling off a cliff, or into a black hole.’ That is exactly what it was like for me and my son. Our family’s experience inspired me to create Lost in Transition, a short film. I want our story to make people think, to give feeling to […]
Over the three years we have been working towards “Paving the Way” many families have said to us “We knew there was a problem when our child was really young but we did not know who to go to for help.” Those families who did speak to a professional often found that person was as […]
We are delighted to announce the launch of the Paving the Way online resource. Paving the Way is our new name for the Early Intervention Project, a joint project between the Challenging Behaviour Foundation, and the Council for Disabled Children.